Friday, December 3, 2010

Chester's Journey - Suffering

When I was twenty I worked as an in-home nursing aid. I mostly worked with geriatrics but I saw a lot of suffering in younger people and children as well. I saw enough suffering (and suffered enough insufferable ingratitude) that I didn't persue that line as a career. I now see suffering on a daily scale that might stagger you. I gloss over it here and a lot of times try to avoid it. Who wants to here on a daily basis "people are idiots"? Talk about stating the obvious.
Chester is suffering right now. On Wednesday, he had to be taken in to get his white cell count done. He was lethargic and had no appetite. He was sent home and we were told to come back if it got worse. Well, it got worse. We came home from the city last night to find that the boy had diarrhea and was feeling weak. The chemo is making him feel wretched and very sick. We were warned that this might happen. I am now getting the usual contingent of advice from I don't know how many people saying "well, maybe you should let him go, maybe you should put him down, maybe you should kill him off because he's suffering." I watched Twyla nearly go through the roof after about the tenth one. Let me explain something to those who think I may not be thinking things through or doing this "for myself". Most people know I suffer from migraines. Those of you who have never experienced this condition will think "awe...poor baby gets headaches". Those people can take an immediate trip to the hot place. When I say I suffer from migraine, I'm not talking about a few headaches. I am talking about agonizing pain Half the time. It is not something that just happens because I am stressed or hung over. And it doesn't just effect the head. It causes vomiting and relentless nausea. It causes my face to go numb and my motor functions to basically disassemble. It causes my eyesight to go (one of the reasons I don't drive, kids...I would be a danger on the road. These things can hit very fast). It causes my thinking to become blurred and it feels like the pressure inside my head will cause it to burst. It causes sinus suffocation and shaking and extreme sensitivity to certain sounds (dog barking and bird screeching especially can be like a loud drill shrieking next to your ears) and light. Fifteen days a month this happens if not more. If I don't take the medication immediately, it doesn't work. If I don't have medication, I will endure three days of this to a week. If a dog suffered from this relentless pain, he would be put down. He's suffering. Trust me. I suffer. And some may be going "well, it's not killing you" but as a matter of fact it can have some very dire effects like the higher potential of stroke if left to go on as well as brain and nerve damage.
If someone were to ask me if I want to be put down, I'd look at them like they were a loonie. You see, life is still sweet. Even when I am so sick I am weeping in agony, life is still sweet. Why should Chester be any different? I can't explain to him saying, " Sweetpea, this medicine is going to make you feel wretched for a while, but then it will pass and you will feel better" and then let him decide. I have to be the thinker for him and put myself into his position. If there was no chance of a parcel of time for Chester to be happy and well and if I thought this would be it, what do you think I would decide? People, when they are told that they have cancer and are offered chemo, choose to go through the suffering it causes because life is sweet and dead is for a really long time, however you look at it. They decide, well, this is going to make me feel like I want to die during moments of intense illness. But I am going to dive in because the alternative is a long time. If it were a human family member going through this I would sit and suffer at watching them suffer as well. I would weep at the pain they are experiencing and hold their hand and see them through to the other side of the treatment.
On Wednesday night when we came home from the vet, we had one of the birds cross over. I let him go. DNR, you know. He had suffered enough and it was his time. Before that, he still had fun and functioned. And it was with a sense of relief that I watched his spirit leave his poor little shell and go free. Chester's spirit is still strong. And let me tell you something. I don't just let my kids go without a fight. It would be easier in some ways. I wouldn't have to clean up hazardous diarrhea at eleven at night or drive through the night to get him to a vet or suffer myself at seeing his illness. God knows it would be cheaper than spending hundreds of dollars for said overnight stay. I would do the same for anyone I cared about. I would not just take the easy path. It's funny. I am left with people's messes to make life and death choices. I get little help and less participation without an exhausting amount of bullying and begging (with some very golden and shining exceptions). If it is Chester's time, and he will tell me it is, then I will help him to cross over in whatever way he needs to. Perhaps he crossed over last night on his own, though I still feel his presence strongly. It is with a sense of dread and worry that I wait to see how he is. Cruelly, unlike with a human child, we are not permitted to stay at their side. But I will be damned if I will let him go down without a fight because he would choose to keep fighting. That's who Chester is. His condition is terminal. We, each and every one of us is suffering from that condition. Life is terminal. Should we not fight to enjoy it for as long as we can, even if there is some suffering to have to do so? Dozens of lives have crossed over in my arms. The Gods willing, that is how Chester will cross over. When he is ready and not a milisecond before. If I am entrusted with these lives, then stop second guessing me. Please. And I promise you, if I am ever put in charge of your life, I will fight just as hard for you and you can cross over when you are damn good and ready and not because somebody decided for you that you've had enough life now. You will go when you tell me it is time. Chemo is a shite thing to have to endure. Ask people who have gone through it and gone into remission if it was worth it to spend a little more time under the sky, seeing the leaves turn and the sun setting and laughing with loved ones. Or chasing a puck. Chester has too much fun to give up, so I won't just give up for him. That is up to him.

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